Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children, Pediatric Multidisciplinary Neurofibromatosis Program Phone: 617-355-6394 (NF1) and 617-355-6388 (NF2) Location: 300 Longwood Ave, Boston, MA 02115
To start a new discussion in this community, please click here. Specialty: Electrodessication
Specialty: NF1 Neurocutaneous Syndromes Clinic
Pittsburgh, PA United States, Lifespan Cancer Institute
Description The Neurofibromatosis Clinic (NC) at Texas Children's Hospital, a joint effort of the Department of Molecular and Human Genetics at Baylor College of Medicine and Texas Children's Hospital, is a multidisciplinary clinic in which patients are seen by physicians in the subspecialities of genetics, ophthalmology, dermatology, neurology, and neurosurgery. Website: Children’s Wisconsin, Physicians: Donald Basel, MD and Dawn Siegel, MD; Clinic Coordinator: Lisa Koneazny, RN, BSN We are committed to researching better and safer treatments for people with NF. What is the best treatment for my condition. Neurofibromatosis Program
Yet he still wanted to see me 3-4 times a year.
Specialty: NF1, NF2 Other NYU Langone experts—including behavioral and learning specialists, geneticists, neurosurgeons, orthopedic surgeons, audiologists, plastic surgeons, and ear, nose, and throat specialists (also known as otolaryngologists)—may assist in your care. Website: University of Oklahoma Health Sciences Center, Physicians: PAC Ashley Taylor (NF); Dr. Anne Tsai, Clinical and Metabolic Geneticis; Clinic Coordinator Anna Wright, BS Website: UF Health Neuromedicine – Neuromedicine Hospital, Physicians: Hans H. Shuhaiber M.D., Clinical Assitant Professor of Neurology, Adult Neurology, Adult Genetics
RASopathy/Neurofibromatosis Genetic Clinic
Winston-Salem, NC United States, Rutgers New Jersey Medical School 208 Replies, Not sure what to put this under so I put in help desk.
Specialty: NF1, NF2, Schwannomatosis Follow us on Twitter.
Looking for a doctor to remove a few .
University of Oklahoma NF Clinic Facility Type: Multi-Disciplinary, Adults, Children, Child and Adolescent Neurology Clinic Phone: 415-353-7596 Location: 1825 Fourth St., Fifth Floor, 5A, San Francisco, CA 94158
UCLA Multidisciplinary NF2 Clinic medical professionals that might be involved with Neurofibromatosis. Website: UT Southwestern/Children’s Health Dallas, Physicians: Laura Klesse, MD, PhD (children) and Lu Le, MD, PhD (adults); Clinic Coordinator: Alexis Kennedy, PNP
7 Replies, Hi there does anyone else doctor know or care about NF. Specialty: NF1, NF2, Schwannomatosis Website: Phoenix Children's Hospital, Physicians: Radhika Dhamija, MD, Geneticist and Neurologist
Seattle, WA United States, Swedish Medical Center
Stanford Children's Neurofibromatosis Clinic Facility Type: Children, Pediatric Neurofibromatosis Clinic Phone: 855-690-2446 or 888-609-1512 Location: 1515 Holcombe Blvd., Houston, TX 77030
Facility Type: Children, Neurodevelopmental Outreach Clinic Phone: 907- 264-6281 Location: 3601 C Street, Suite 322, Anchorage, AK 99503
This content does not have an Arabic version. 4 Replies, I have had NF1 all my life. If you need help accessing our website, call 855-698-9991, Novel Drug Therapy Helps a Boy with a Rare Genetic Disease. Patients may be accompanied by visitors.
Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children, Le Bonheur Outpatient Center - Genetics Phone: 866-870-5570 Location: 51 N. Dunlap St., 4th Floor, Memphis, TN 38105
Riley Neurofibromatosis Clinic
We can help you find a doctor. Cleveland, OH United States, Nationwide Children's Hospital ion, Hernia repair, Rhinoplasty, Tummy tuck, Laser resurfacing, Lymphovenous bypass, Breast surgery, Breast reduction, Vascularized free fibula transfer, Face lift, Facial filler injection, Breast reconstruction, Microvascular surgery, Breast reconstruction with breast implants, Botox injection, Reconstructive surgery, Mohs surgery, Blepharoplasty, Vascularized lymph node transfer, Breast reconstruction with flap surgery, Skin cancer reconstruction, Hernia, Facial deformity, Facial injury, Skin cancer, Neurofibromatosis, Weight, Facial nerve disorder, Facial filler injection, Breast cancer-related lymphedema, Lymphedema, Facial skin cancer, Obesity, Burns, Facial paralysis, Traumatic injury, ioma, Choroid plexus papilloma, Glioma, Chordoma, Glioblastoma, Pituitary tumor, Brain tumor, metastasis, Neurofibromatosis, Lymphoma, Breast cancer, Glioma, Ependymoma, Brain tumor, Oligodendroglioma, Neurofibroma, Sarcoma, Meningioma, Schwannomatosis, Brachial plexus injury, Peripheral nerve injury, Neurofibromatosis, Peripheral nerve tumors, Brain metastasis, Lumbar herniated disc, Pituitary tumor.
Specialty: NF1, NF2, Schwannomatosis
Specialty: NF1, Schwannomatosis Tell us your medical story. University of Pennsylvania Neurofibromatosis Clinic Follow us on Facebook.
I am in New Jersey . Website: Vida Bela Plastic Surgery, Physicians: Chelsea Snider, MD, Director of Vida Bela Plastic Surgery | Plastic, Reconstructive, & Craniofacial Surgery | Fax: 469-598-2399 | Email: DrSnider@VidaBelaPlasticSurgery.com
4 Replies, My first time back here in a long time, but wanted to share this information with everyone.
Nashville, TN United States, Dell Children's Hospital Specialty: NF1, NF2, Schwannomatosis Chicago, IL UNITED STATES, University of Chicago - Orland Park
Minneapolis, MN United States, Children's Hospitals and Clinics of Minnesota
Columbus, OH United States, The Ohio State University NYU Langone Health is one of the nation’s premier academic medical centers. Albany, NY United States, Montefiore Medical Center/Children's Hospital at Montefiore
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